Document Type

Article

Publication Title

Sociotechnical Safeguards for Genomic Data Privacy

Publication Date

3-2022

ISSN

1471-0056

Page Number

https://www.nature.com/articles/s41576-022-00455-y

Keywords

genomic data privacy, privacy law, health law

Disciplines

Health Law and Policy | Law | Privacy Law

Abstract

Recent developments in a variety of sectors, including health care, research and the direct-to-consumer industry, have led to a dramatic increase in the amount of genomic data that are collected, used and shared. This state of affairs raises new and challenging concerns for personal privacy, both legally and technically. This Review appraises existing and emerging threats to genomic data privacy and discusses how well current legal frameworks and technical safeguards mitigate these concerns. It concludes with a discussion of remaining and emerging challenges and illustrates possible solutions that can balance protecting privacy and realizing the benefits that result from the sharing of genetic information.

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